Category Archives: Caregivers

Supportive Connections

What is resilience? It’s our ability to bounce when we come up against something tough, like cancer. Will we bounce like a rubber ball, or like a tomato? I learned a lot about resilience at the 2018 Breath of Hope Lung Foundation’s Lung Cancer Summit. Perhaps my greatest takeaways came from a talk delivered by Dr. Jeffery Kendall. PsyD, LP.[1] Dr. Kendall delivered a keynote address entitled, Resilience and Hope for Survivors & Caregivers. In the next few weeks, I am going to share a few of the things I learned from this inspiring message. I’ll start today by touching on the first key ingredient to a resilient life: supportive connections. The impact of supportive connections on cancer survivors and caregivers can’t be overlooked. Yet Read more…

What if

Cancer can often feel like a roll of the dice. The unknown can be the hardest part of cancer and its treatment. This causes patients and their families to often ask, what if. One year into his treatment plan, Dan’s doctor declared that Dan was NED (having no evidence of disease). This is a term used to describe what people think of as a state of remission (in certain types of cancer). It is a wonderful feeling to be NED. Still, because Dan’s cancer was advanced and ultimately terminal, we had been told that it was only temporary and that at some point Dan’s cancer would rear its ugly head again. What If One thing that surprised me was how uneasy I felt, even during Read more…

Giving gifts to brighten a patient's day.

Confession: I’m a Terrible Gift Giver. I don’t know why. I just am. Each Christmas my sisters-in-law and I all exchange gifts. They are little gift bags of things that make life fun: notebooks, lotions, great pens, etc. I am always in awe of the ladies’ creativity and thoughtfulness. In comparison, my ideas are unoriginal, and my gift bags aren’t nearly as cute. Still, they appreciate my effort. Gifts are another way to show someone you care about them. Money Money can be a sensitive subject, but it is an important part of life. Many times, we’ve had people bless us with cash, checks, and gift cards just when we needed it most. Because of being self-employed Realtors, we don’t get sick pay. So, when Dan Read more…

when you have to watch your loved one suffer

I often write about the practical side of facing cancer. One thing I haven’t written about is what it’s like to watch your loved one suffer. It’s something that people try not to think about. Friends and family who don’t live with the patient 24/7 often miss the drama of middle of the night pain. This is a good thing. It’s not something that anyone would want to see and hear. Yet it falls to a spouse or other close caregiver to be there. This is also a good thing because no one should suffer alone. What is like, really, to watch your loved one suffer? The best way I can describe it is a feeling of utter helplessness. You want to make the pain Read more…

Hospice and palliative care

The battles of the war against cancer are waged, daily within the bodies of patients young and old, wealthy and poor. There we have made great strides. In 2014, “UK death rates for breast, bowel, lung and prostate cancer combined are down by almost a third in 20 years.” (1) Yet, like any war, the casualties at the hands of this disease are great. That’s when hospice and palliative care enter the picture. Curing vs. Healing There comes a time when we need to switch from curative treatment to healing efforts. We can heal, even as we die. There can be healing of relationships, spiritual healing, letting go of the things that never should have been clung to in the first place. Hospice and palliative Read more…

Ring Theory Circle of Support

The Ring Theory-Finding Your Circle of Support The Ring Theory was created by breast cancer survivor and clinical psychologist, Dr. Susan Silk Ph.D., and arbitrator/mediator, Barry Goldman. The gist of it is this: Comfort in. Dump out. Who you comfort, and who you “dump” your grief on (in other words, who comforts you) will determine what circle of support you reside in. Take out a piece of paper. In the middle of the page, draw a small circle. Label it with the patient’s name. The patient is in the center circle of support because the patient is the center of their cancer universe. It is everyone else’s job to support them. No one is allowed to dump on the patient. What does that mean? The Read more…

Dear A to Z Challenge Bloggers,

A week ago, my husband was put on in-home hospice. While I had my posts written and scheduled to post, in advance, I have fallen behind on returning comments. When I am able, I will certainly so so. I value your comments and your blogs. Thank you for understanding if I am delayed. The hardest thing I have ever done is helping my husband prepare to die.

A to Z Challenge Survivor

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