Category Archives: Patients

Advance Care Directive

What is an Advance Care Directive? People often think of an advance care directive in the context of a terminal illness, such as cancer. But, this legal document should be in place for unexpected emergencies, such as car accidents, as well. It is also known as a healthcare declaration, a directive to physicians, a medical directive, a health care directive, and a living will. The exact terminology often depends on where you live. Planning Ahead: Yes, You Do Need One! Advance care directives are a powerful tool. They take away guilt and resentment that survivors may have regarding how someone has died. You’re able to be very specific about your feelings regarding end-of-life care, removing any doubts that various family members may have. This is Read more…

Breathlessness A Medical Approach

This is part 2 of our Breathless Series. In Part 1, we looked at some of the reasons for breathlessness in cancer patients. I also shared my husband’s experience with shortness of breath to the point he nearly died. There are both medical and non-medical approaches to alleviate the symptoms of breathlessness. In this post, we will talk about the medical approach. The Lung Cancer Alliance In 2017, the Lung Cancer Alliance recently held a webinar called, “Breathing Easier.” It was the first webinar in their Coping Series. This is a series designed to educate and provide practical ways to manage the most common symptoms and side effects experienced by lung cancer patients and survivors. Because Approximately half of all cancer patients complain of breathlessness at Read more…

Baby Steps for resilience

Realistic goals are an essential part of becoming resilient on a cancer journey. Unfortunately, too many people have unrealistic goals. This leads to frustration; frustration with others and frustration with themselves. Thankfully, with some time and practice, these habits can be changed. Baby Steps toward Your Realistic Goals Realistic goals start by realizing that life is made up of baby steps, more than grand leaps and bounds. If you’ve ever been a runner, you know that a person can sprint at a very high speed for a short distance, but they could never run a marathon at that same speed. They would quickly burn out. It’s all about pacing, to ensure they can go the distance. Starting is Easy In the beginning, we start with Read more…

Shortness of breath and cancer

The most common side effect of lung cancer is dyspnea, better known as shortness of breath. 90% of Lung cancer patients experience this at some point, during, and even long after treatment has ended. In a Lung Cancer Alliance survey, lung cancer survivors of 5 or more years, still rated it as their most problematic issue. It isn’t only lung cancer patients who suffer from breathlessness. Approximately half of all cancer patients complain of breathlessness at some point. (1) Shortness of breath is sometimes called air hunger. Unfortunately, for many cancer patients, it’s a part of their everyday life, negatively impacting their ability to do the things they need and want to do. Our Story In the fall of 2015, Dan’s stage IV lung cancer Read more…

Priceless4purpose

We’ve recommended Priceless4Purpose and Mystic Views to several friends facing cancer and they have had as good an experience as we did. Spotlight on Giving Back: Priceless4Purpose Being diagnosed with cancer plunges patients and family members into the quicksand of physical, financial, mental, and emotional overwhelm. It can be hard for patients to take a break in order to refresh. Priceless4Purpose: The Steve Bartlett Cancer Non-Profit Organization. is doing something about this by providing an opportunity for patients and a companion to stay at Mystic Views, a bed and breakfast in northern Minnesota. Cindy Bartlett knows the strain that cancer can put on people, as much as anyone. The story of this unique respite service began in 2005 when Cindy and her husband Steve decided to start Read more…

fatigue is why cancer patients are so tired all the time

This is a picture of my husband, Dan, during a 2-hour visit to the American Swedish Institute in Minneapolis. He became so tired on this trip, that he had to lay down. Most people experience fatigue at some point in their lives, but it usually doesn’t last long. Once you sleep or even just quietly rest for a while, the fatigue goes away and you feel refreshed. Have you ever wondered why cancer patients are always so tired? Healing takes energy I remember the fatigue of early pregnancy. When I asked my doctor about it, he said that building a human being within my body was the equivalent of climbing a mountain. I had never thought of it that way. It takes that same energy to Read more…

a shift in perspective

Today we’ll continue to look at resilience and how when things get hard, we can bounce. We will look at 4 ways a shift in perspective can make a big difference in our lives as we face cancer (whether our own, or cancer in the life of a loved one). Avoid seeing crises A shift in perspective doesn’t mean going into denial or sticking your head in the sand like an ostrich (which by the way, they don’t actually do). It just means that you reserve crisis mode for a real crisis, rather than situations that might someday turn into a crisis. Some people are natural worry warts. They do what a former pastor of ours called horriblizing. They find the drama in every situation Read more…

cancer survivorship tip

When people hear that my husband has survived for 6 years with stage IV non-small cell lung cancer they often ask me what our top cancer survivorship tip would be. So in honor of his 6th cancerversary, I have put together some of the best advice we have used and continue to use. Cancer Survivorship Tip #1 Get Educated I don’t mean that you should read articles filled with pseudoscience. You should find out exactly what kind of cancer you have and what the newest and older treatments for this cancer are. How can you expect this cancer to affect your life in the near future? One of your best resources will be your oncology team. That brings us to the next tip… Cancer Survivorship Read more…

Metastasis

One of the most frightening words a cancer patient can hear is, “metastasis.” We learned in the post, Cancer Cells: Juvenile Delinquent Zombies, that one of the reasons that cancer is such a deadly disease is its ability to metastasize, or spread from one part of the body to another. Depending on what kind of cancer the patient has, the most serious form is known as “metastatic.” How Cancer Metastasizes The place where cancer first develops is called the primary tumor site. From there, cancer spreads locally, invading nearby healthy tissue. If too much time passes between the emergence of the primary tumor and treatment or treatment is unsuccessful, cancer cells will break away from the primary tumor site. They then move through the walls of Read more…

mesothelioma advocate

As an advocate for cancer patients and their families, I daily hear from people facing cancer. Recently, a gentleman named Virgil wrote to me about his experience, Doctors recently diagnosed Virgil with mesothelioma. This diagnosis turned Virgil’s life upside down. What is Mesothelioma? Mesothelioma is a rare cancer that forms in the thin protective tissues which cover the lungs and the abdomen. Exposure to asbestos causes cancer in the mesothelium tissues. This cancer is caused by exposure to asbestos. Asbestos is a group of silicate minerals that are fibrous in nature and functions well as a fire retardant. It was once a commonly used insulator. Now that the dangers of asbestos are well known, it has fallen out of use. It can still be found Read more…

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